Dylan Siegel wrote “Chocolate Bar,” to help raise money to cure rare liver disease GSD Type 1b that his friend Jonah suffers from. Beginning at a school event in November 2012, Dylan sold 200 copies of his book plus 100 custom wrapped chocolate bars (donated by Whole Foods Market), making over $5,000 in just hours. Then, Dylan and best friend Jonah held a book reading and signing at a Barnes & Noble bookstore, attracting attention from local media and landing them appearances on CBS’ The Doctors, Headline News’ Raising America, Fox News’ Fox & Friends, The Today Show in Australia, an interview with Chelsea Clinton for NBC Nightly News with Brian Williams, and ABC World News with Diane Sawyer. The boys have also appeared in print on numerous websites, in newspapers and magazines. To date, nearly 25,000 copies of Dylan’s book have sold in over 60 countries worldwide, helping Dylan reach his $1 million goal in just two years. But Dylan says won’t stop until Jonah is cured.
All money raised goes directly to Jonah’s research fund at the University of Florida where his doctor, GSD expert Dr. David Weinstein, is completing the research phase and preparing for human clinical trials. The cure for GSD will prove that gene therapy works and therefore charts a course for changing the face of health care.
Via ABC News
Image credit: chocolatebarbook.com